Hello all!  We’ve been a little MIA so here is a recap of the last few months.  On March 14, 2017 we canceled the meeting due to the ever unpredictable New England Weather.  On April 11, 2017 we were very excited to have Maggie Wurm join us and educate us on Assistive Technology.  It was amazing to be exposed to a range of low and high tech devices.  She spoke about “buy in” from both the child and the adult.  She shared about her family’s long journey to finding devices that work.  Another thank you to Maggie for an excellent presentation! Maggie is hosting an AAC Parent-Caregiver Group, click the blue link for more information.

On May 9, 2017 we gave a warm goodbye to Kathleen Agin at Evercourse who is retiring.  We wish her the best of luck on this new chapter in her life.  During the same meeting we were pleased to have Debra Taylor, Director of the Catastrophic Illness in Children Relief Fund present at the Medical Home Meeting.  The purpose of the fund is to “provide financial assistance for MA families who have large expenses due to a child’s illness or disability which are not covered by insurance…”.  Debra was understanding that the application process for the relief fund can be daunting for families, especially due to all the paperwork required.  She expressed that there isn’t much leeway in the process as the relief fund was put into place due to a legislation.  Debra encouraged anyone who is going through the application process to call (1-800-882-1435) with any questions because there are so many different situations it is difficult to explain them all.  She also directed us to utilize the website, Catastrophic Illness Website.  The following is the presentation she shared during the meeting: CICRF Presentation.

Thank you all for your wonderful support thus far this year!  As always, it is a great pleasure to come together during these meetings.  Enjoy the spring weather!